(P3): Advocacy with Individuals and Families

Cartoon of IEPC with school staff explaining the legalese poorly without providing any real information and the parents obviously confused

There is a standard way to advocate on behalf of an individual or that person and the family. The weak constraint in this standard scenario is ordinarily a set of rules regulating the target’s interaction with individuals, commonly described as individual rights. There will be one form or another of negotiation over customized supports for the person, and a set of rules for how supports are developed and implemented. There is typically a complaint system, an appeals system, and a fair hearing system to organize the process of resolving disagreements.

The ordinary reality of negotiation in this kind of weak constraint is that the target tries to manage the negotiation process by discouraging family or individual involvement, making the entire negotiation as complex and intimidating as possible, not providing support to the person or the family about how to use the regulatory framework of the support system, offering an existing support even if it clearly doesn’t provide the customization needed to actually succeed, framing the request for supports as an individual unrealistic demand rather than a system problem, using the argument of policy or practice to claim that the request is invalid, threatening the family or individual with punishment, repeated use of the strategy of denial, followed by pulling back on the denial at every successful advocacy step, and so on, and so on, and so on. All these tactics are designed to restore the constraint to its past usual managed cycle.

When we successfully destabilize this constraint management approach, on the other hand, the system must do things that it ordinarily does not do (our destabilizing of the weak constraint is enabling). This requires the target to commit resources (funding, expertise, staff and administrator time) to non-normal workflow. The target makes a judgement about whether they can contain the destabilized constraint or not. Under the impact of the destabilization, it is this judgment that advocacy tries to manage.

If the destabilization is successful, and the advocated change occurs, the target accommodates the change and remodels the destabilized weak constraint so that it is moved back to a predictable cycle.

To get some of the depth of this advocacy framework, think of the difference between a pick-up game of basketball, baseball, soccer, etc. by a bunch of 10year-old kids. They set all the rules, make all the ethical judgments, preserve competition in a way they believe to be fair. Also, though such a game seems to be a competitive one, it is in fact enabling, since the experience of the game by the participants develops social skills that the participants will use throughout their adolescence and adulthood. In a word, this kind of competition socializes the participants. This is the way that the basic successful advocacy pattern described above works.  At its best, it socializes the target system to be more responsive to the participants.

Now think through what happens to the kid’s “competition” when adults formalize their sports events over time and tie them ultimately to the behavior and constraints in professional sports (without the money). There is no enabling relationship. Every part of professional sports is engaged in a war with no ethics except those imposed from the outside. Money, fame, celebrity, and cult status are the only meaningful goals, none of which are enabling in any human way. While competition does not have to be winner-take-all (WTA), it has largely become that in every arena of adult behavior, far beyond the obvious example of professional sports.

The individual and family form a complex adaptive system, with the purpose of the advocacy forming the governing constraint on the CAS. When a family reaches out to an advocate, they are trying to enlarge the space of possibilities to increase the likelihood of a valued outcome.

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Author: disabilitynorm

hubby2jill, 2dogs, advocate45+yrs, change strategist, trainer, geezer, pa2Loree, gndpa2Nevin

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