(P3): Legislative Advocacy: Part Two

A diagram of how Advocacy Coalitions affect systems. See link in resources for image text.

Ultimately, if we wish systems advocacy to approach the scope for which we hoped, we will have to change both the kind of macro-frameworks within which we advocate, and the methods and mobilizations we use to impact both the existing frameworks and the innovations we wish to build.

This post will cover how we need to change our methods and mobilizations, and a later post will cover the creation of new visions of support systems that reflect the reality of complex adaptive systems, and the rejection of bureaucratic and mechanical forms of support.

How will we do systems advocacy differently in the future?

I am old enough to remember the talking points we used to mobilize against discrimination, institutionalization, the taking away of rights generally, and the de-valuing of people in our community. Rather than go over those points, I would like to reframe our values for talking points that could be used in this era to begin the creation of systems with governing constraints that promote our current understanding of what it means to support our community in the expansion of life possibilities, personal autonomy, and the endless exploration of choice.

Some preliminary notions of how we might talk about the governing constraints of potential new systems of support:

  • All systems must permit broad customized collaboration among all relevant actors organized around the hub of the person who is creating the personal support, and that person’s social network.
  • Systems of support must embrace the tension of locally developed mutual support alternatives or complements to the System’s closed approach as a normal and expected part of deeply engaged collaboration in creating customized supports for a person.
  • Collaboration is viewed as necessary to enable and coordinate the emergence of genuinely customized and flexible support over the lifetime of the person.
  • Supported Decision-Making is the core mental framework and skill set for making new support system governing constraints genuinely effective.

These principles can’t be implemented in a closed system of rule and regulation that limits outcomes to the preconceived. As Ashby’s Law of Requisite Variety points out, only “Variety absorbs variety” ( see the link above). The systems that can collaborate to realize the values in the preliminary notions above must create a temporary Complex Adaptive System (CAS), the planning collaborative group, that can creatively marshal resources and enable the emergence of a customized support in the actual life of a real person. This is no different in principle (though different in size and scope) from anyone embracing an intention to do something they have never done before, and then exploring their possibility space to produce an emergence of something that reasonably matches their intention.

Creative Commons Attribution 4.0 International License

Author: disabilitynorm

hubby2jill, advocate50+yrs, change strategist, trainer, geezer, Tom and Pepper the wundermutts

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