- Benefit society
- Mutual Aid and Disaster Relief
- What is a community foundation?
- Big Door Brigade
- How the Disability Community Supported Each Other When the Power Went Out
The community of people with disabilities has used a strategy of iterative change to build rights and services entitlement for many decades. It is becoming less productive to focus solely on this strategy over time. There are many reasons for this:
- For the last half-century, cultural and political change has pushed an agenda of ignoring the needs of others to gratify personal needs. This effort has degraded the economy and almost eliminated the resilience of individuals and their families. Most of us have little to fall back on financially or socially. Our entitlements have become what we depend on, and when those are threatened politically or financially, we don’t have any place to turn.
- COVID-19 has exposed the brittleness of our community’s support in the larger society. Many of us will be scrambling for the near term just to stay alive. Regardless of how successful we are in adapting to the current social, political, and economic losses we will all experience, we will be eventually faced with creating some new support system largely without the help of those social, political, and economic institutions upon which we have depended in the past.
- At the same time, many members of our community depend on technologically sophisticated and very expensive supports to maintain life. This is a chronic issue which COVID-19 is demonstrating in large during the current crisis. We don’t have the option of ignoring or distancing ourselves from that reality. We will have to struggle with only partial success to maintain that lifeline to which we have become accustomed. In the long term, we will have to produce other ways of support that are not as fragile. We will have to do that ourselves because the larger society will fail in a variety of unpredictable ways over the next decade.
- We can no longer depend on the System to support us. At the same time, we can’t avoid the System. Our strategy must be a bifurcated one:
- Resistance to the loss of our rights and the destruction of our ability to live through the preservation and improvement of the System to the extent that is possible.
- Building a much more sophisticated mutual aid network for our community that does not depend on the System for its funding or development.
We must also give up on the long-term notion of creating supports which are then absorbed by the System. Anything absorbed by the System will be subjected to the logic of the System and will have the same brittleness that the current System has. We must find a way to maintain what we need without allowing the System to reduce its effectiveness and make us dependent on the System’s current political whims.
If this goal seems impossible to you, you can begin to see the extent to which we have become dependent on systems that we do not control, and which are not accountable to us. The logic of these systems of support will never be accountable to us no matter how much we tweak them. We must view them as tools, not as solutions, tools which we use as we see fit. We must reach a point where we are not forced to submit to them.
This dual strategy can be viewed as the integration of:
- The System as a Tool not a Solution.
- The development of scalable Mutual Aid networks completely independent of the System.