- Mental Health Self-Help Tools
- Using Advocacy as a Self-Help Tool
- Support for self care for patients with chronic disease
- Self-care isn’t enough. We need community care to thrive.
We mostly view government (The System) as a repository of solutions to problems we can’t solve ourselves. I don’t know if this was ever true, but it certainly isn’t true now, especially in the lives of our community of people with disabilities. The capacity of government to take responsibility for solving any problem is undermined by pressure to reduce expenditures, frank corruption, incompetence, and a virtually universal refusal to ever take responsibility for anything that goes wrong. This “Not Me” attitude occurs both in disaster, and more recently, as a general marketing framework. “Don’t expect much from us”. Government’s response is randomly useful and randomly destructive,.
So, when we act as though the government has as its purpose the solving of our life problems, and we suffer disappointment when it doesn’t, we are perpetuating a species of victimhood for ourselves from which we can’t exit. We can only feel more deeply victimized and helpless.
We need to stop looking at The System as a Solution to our problems in living as people with disabilities. It will never be that. At the same time, there is an enormous amount of resources tied up (embedded) in The System, even if an ever-increasing amount of those resources are used in monitoring, administration, and political purposes that have nothing to do with support. The mission of support, the supposed purpose, gradually becomes more and more to deny support, investing in administrative complexity to make support increasingly difficult to access. Everything about The System is double-edged, and we can’t ever be sure what edge we will get when we try to use it the way it is supposed to work.
While we can’t depend on The System, we can’t simply ignore it either. We must make use of The System or forgo the resources. Frankly, we currently have no way of taking the resources in The System and making them directly available, nor are we likely to anytime soon.
As we think they were intended.
To deal with this reality, we must adopt a dual approach that will seem unnatural:
- We must get better at extracting support from The System as it is, not as we wish it would be. This will require us to be far more strategic in our interactions with the System, and we will have to understand that The System will continue to deteriorate even as our advocacy creates some local real improvements in how it works. Local improvement, but System-wide slow breakdown is the trend for the foreseeable future.
- In addition to extracting support from The System, we will need to disassociate resources from The System that we can use for building an alternative that I have called Our System. For example, we might advocate to move resources from parts of The System that are moribund or useless to ones where there is a better chance of being able to use them to create Our System.
This is an abstract overview of how the three motifs must be woven to expand our control over our lives and our freedom of choice.
Next Time: Using the System as a Tool